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Death Literacy Index: Palliative Care Evening for Primary Care 2023

(Note: the wording of this survey has been dictated by an external consultant on behalf of the Department of Health and Aged Care. If you are unsure of any item, please go with what you think the question is asking)

The Death Literacy Index is a population based tool measuring people’s knowledge and skills that allow them to make active choices around end of life options, and understanding what contributes to people’s level of death literacy.

The shortened 29 question form is estimated to take 3-5 minutes. And includes 6 sections of scaled questions.

Scoring and analysis will be completed externally, but will help inform strengths, opportunities for improvements, key learnings, and standpoint against the Australian average.

Talk about death, dying or grieving to a close friend.
Talk about death, dying or grieving to a child.
Talk to a newly bereaved person about their loss.
Talk to a GP about support at home or in their place of care for a dying person.
Feeding a person or assisting them to eat.
Bathing a person.
Lifting a person or assisting to transfer them.
Administering injections.
Increased my emotional strength to help others with death and dying processes.
Led me to re evaluate what is important and not important in life.
Developed my wisdom and understanding.
Made me more compassionate towards myself.
Provided me with skills and strategies when facing similar challenges in the future.
I know the law regarding dying at home
I feel confident in knowing what documents you need to complete in planning for death.
I know how to navigate the health care system to support a dying person to receive care.
I know how to navigate funeral services and options
I know how to access palliative care in my area
I have sufficient understanding of illness trajectories to make informed decisions around medical treatments available and how that will shape quality of end of life.
I know about the contribution the cemetery staff can make at end of life.
Access community support.
Provide day to day care for the dying person.
Access equipment required for care.
Access culturally appropriate support.
Access emotional support for myself.
People with life threatening illnesses.
People who are dying.
Carers for people who are dying.
People who are grieving.