Integrated Model of Dementia Care Program- Carers Survey

Welcome to the survey hub for the Integrated Model of Dementia Care Program

Welcome to the survey hub for the Integrated Model of Dementia Care Program

Carers Survey 2019

Brisbane North Primary Health Network (PHN), an initiative of the Government is currently implementing a 4-year Integrated Model of Dementia Care Program aiming to improve the quality of care for people living with dementia and their carers in the Brisbane North region. We are seeking your feedback to gain a better understanding about the needs of carers of people with dementia. This will assist us in developing and implementing appropriate support services for the region.

The survey should take approximately 5 minutes to complete and your participation is voluntary.

Demographic information is collected in this survey. It is acknowledged that participants may feel their identity could be revealed through collection of this information. However, no part of the analysis will seek to identify participants. The PHN has put in place procedures to ensure individual privacy is maintained at all stages. If you have any enquiries or require further information, please contact Amalia Savini at amalia.savini@brisbanenorthphn.org.au or 07 3630 7343.



1. How would you describe yourself?
Maximum characters 255
2. What type of dementia does the person who you care for have?
Maximum characters 255
3. Do you live with a person whom you care for?
4. Within the past six-months have you experienced any of the following related to your responsibilities providing care to a person with dementia ?
4. Within the past six-months have you experienced any of the following related to your responsibilities providing care to a person with dementia ? Never Rarely Sometimes Always
Lack of information about dementia
Lack of information about treatment
Lack of information about services
Delays in transfer of information between families and care service providers
Feeling burned out or overwhelmed by caring responsibilities
Disappointment caused by the illness, concerns about the person’s future
Not enough time for oneself
Fear of stigmatisation and discrimination
Social isolation
Conflicts within the family
Difficulty supporting the person with dementia with activities of daily living (e.g. personal hygiene, mobility)
Difficultly keeping the household in order (e.g. bills, shopping, cooking, cleaning)
Lack of appropriate transportation
Delays in accessing services
Difficulty organising appointments and coordinating services
Difficulty communicating with the person with dementia
Difficulty coping with changes in behaviour of the person with dementia
Concerns about my own physical health
Other (please specify)
Maximum characters 255
Options are limited to
Maximum characters 255

Current support services

The next section asks about support services you currently access.

7. How satisfied are you with the support services you currently access?
Options are limited to
Maximum characters 255
9. How do you prefer to receive information about available support services (select one)?
Maximum characters 255
11. What is your gender? (optional)
12. What is your age? (optional)?

The person with dementia

The following questions are about the person with dementia you are/were caring for:

13. How old is the person you care for? (optional)
14. Are you their ? (optional)
15. What is your relationship to the person with dementia you care for? (optional)
Maximum characters 255
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